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RESEARCH PARTICIPANT PRIVACY NOTICE, CONSENT, AND NON-DISCLOSURE AGREEMENT

For a full review of consent & privacy notices, please select the region that applies to you

Privacy Notice, Consent, and Non-Disclosure Agreement

Thank you for your interest in participating in this market research study commissioned by Sago’s client (a market research agency or a company from another sector). This study may also be sponsored by another company whose name may be revealed at the end of the study to avoid unconsciously influencing you.

If this is applicable regarding your employment, you must obtain the required third-party authorizations and comply with any limitations imposed by these third parties on your participation. Sago won’t obtain such prior authorization on your behalf. It is your sole responsibility to understand any potential conflicts of interest in your participation.

As a market research company, Sago is bound by the professional ethics and codes of national and international market research associations and the privacy applicable state, national, and international laws and regulations. In this context, your participation in this market research is voluntary. Before you may participate, you must formally acknowledge and agree to the following information. When participants are under 18, the parent or the adult custodian must consent on behalf of the child.

 If you have any questions regarding this agreement, refer to the list below to contact your respective location:

Location Postal address of the entity Email Address for Contact
Global

(non-EU Countries)

  SS Holdings Group, LLC

101 Wood Avenue South, Suite 501, Iselin, NJ 08830

  [email protected]
Canada  370 King St. West, 5th floor, Box 4.

Toronto, ON M5V 1J9

  [email protected]
France  Schlesinger Group France

122, rue Amelot, 75011 Paris, France

  [email protected]
Germany  Schlesinger Group Germany, GmbH

Neuhauser Strasse 27, 80331 Munich, Germany

  [email protected]
Spain  Schlesinger Group Market Research Spain, SL

Calle Diputación, 180, 4. 08011, Barcelona, Spain

  [email protected]
UK  Schlesinger Group UK, Limited

9 Kingsway, London, WC2B 6XF, United Kingdom

  [email protected]

 

What type of personal information will Sago process about you?
For market research studies, and according to the subject of the study, Sago may collect and use the following information:

  • Identification information: first name, last name, initials, username, contact details, online identifier …etc.
  • Characteristics: date of birth, gender, geographic location, marital status, family structure, goods and services owned or used, socio-professional category, housing occupancy status etc.
  • Professional information: education, job titles, specialty, work history, certifications, company or institution name etc.
  • Opinions and experiences: interests, likes or dislikes, etc.
  • Devices used: IP address, MAC address, browser fingerprint etc.
  • Personal images: taking of photos, recording of video and audio etc.
  • Special categories: consumer health data, including any personal information that is linkable to a consumer and that identifies the consumer’s past, present, or future physical or mental health status and any beliefs or thoughts, migration background, gender identity, and sexual orientation, health and medical conditions, financial information etc.

How does Sago get your personal information?
The personal information processed by Sago is directly provided by you. No personal information will be indirectly received from external sources.

Why does Sago have your personal information?
Sago will use the personal information you have provided for market research purposes, including facility rental, study recruitment, study management, research activities, quality controls, and incentive payment.

What authorizes Sago to process your personal data?
Sago processes some of your personal information on the basis of your consent. You can remove your consent at any time. You can do this by contacting the contact email address above. Other categories of personal information may be processed on the basis of Sago legal obligations or Sago legitimate interest to do so (for quality control, for example).

Who will access your personal information?
Any international data transfer would be carried out on the basis of your consent and subject to appropriate legal safeguards to ensure that your personal data is duly protected. Sago may share your personal information with the following recipients:

  • Any member of Sago Group entitled to know, which means subsidiaries and holding companies worldwide, may receive your personal data for market research purposes and project-related services/support. All these companies are subject to the same level of security based on the Group’s policies and internal rules. A link to our Group privacy policy can be found here. Furthermore, our head office is part of the data privacy framework. A link to additional information can be found here.
  • Sago subcontractors who implement technical and organizational security measures may receive your necessary personal information to provide adequate support for study purposes. They can be located worldwide.
  • Sago client’s subcontractors, to whom Sago is required to transmit your data for study purposes and in accordance with the client’s instructions. These subcontractors may be located worldwide.
  • Sago client will receive, at the end of the study, an anonymous report with aggregated data about all the participants. During the study, they will also receive information about you in a pseudonymized form, or in an identifying form if they have a compelling reason. They may be located worldwide.
  • The study sponsor may also receive anonymous or pseudonymized information. They may be located worldwide.
  • Sago client and/or the study sponsor may attend by observing the discussion live or later by streaming exclusively to achieve the study’s objectives. The interviews may be recorded by Sago with our tools and infrastructure or by the Client.
  • For Healthcare studies: If you report an adverse event (an undesired event that may affect a person’s health or that is related to the handling or consumption of a product or substance during a healthcare procedure) during the study (during the recruitment, the interview or the focus group), Sago will be required to inform its client as well as the pharmacovigilance department of the pharmaceutical companies which sponsors the market research study. Sago won’t reveal the identity of the patient participants to the pharmaceutical sponsor without the patient’s consent.
  • However, European healthcare professional participants must report this event to the appropriate authorities. You can choose between 1/ reporting the adverse event yourself and anonymously via the official reporting services, 2/ reporting it yourself directly to the pharmaceutical sponsor or Sago client and lifting your anonymity to them, or 3/ reporting it to Sago as an intermediary between you and Sago client or the pharmaceutical sponsor.

How does Sago store your personal information?
Sago will securely store your personal information on our internal servers in the U.S., Canada, or EU, following the ISO 27001 Standard. Depending on the platforms used, your personal information may also be securely stored at our data hosts: Microsoft Azure in Canada, the EU or the U.S. (link to their privacy notice here), AWS in the EU and the U.S. (link to their privacy notice here), and Rackspace in the U.S. (link to their privacy notice here).

Sago clients who would receive personal information about you are legally obliged to implement appropriate technical and organizational measures to ensure a level of security appropriate to the risks, in particular from accidental or unlawful destruction, loss, alteration, and unauthorized disclosure.

 Sago keeps your financial information for up to 10 years for legal purposes and our tax obligations. By default, unless otherwise instructed by the study client, Sago will keep the project research records for 12 months for quality control and your signed consent for at least 24 months for traceability. Sago will then delete this data. Video recordings made by Sago through our platform QualBoard or other tools/devices (such as Teams, Zoom, and local CLT recording systems) will be archived 90 days from the end of the study and deleted 180 days after the project closing unless otherwise instructed by the study client.

What are your rights on your personal data?
Under data protection law, you have rights including:

  • Your right of access – You have the right to ask us for copies of your personal information.
  • Your right to rectification – You have the right to ask us to rectify information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
  • Your right to erasure – You have the right to ask us to erase your personal information in certain circumstances.
  • Your right to restriction of processing – You have the right to ask us to restrict the processing of your information in certain circumstances.
  • Your right to object to processing – You have the right to object to the processing of your personal data in certain circumstances.
  • Your right to data portability – You have the right to ask that we transfer the information you gave us to another organization or you.

Please note that a request may be refused if it is manifestly unfounded or excessive. You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond. Please contact us at the contact email address above if you wish to make a request. If you are unhappy with how Sago has processed your data, you can complain to the supervisory data protection authority in particular in the Member State of your habitual residence, place of work or of an alleged infringement of the data privacy regulation.

We will respond to your request as required under applicable privacy law(s). When you submit a request, we will take steps to verify your identity and your request by matching the information provided by you with the information we have in our records. In some cases, we may request additional information in order to verify your identity, or where necessary to process your request. If we are unable to verify your identity after a good faith attempt, we may deny the request and, if so, will explain the basis for the denial.

Non-disclosure agreement

    • During the study, we may present you with new products or concepts that are not yet known to the general public in order to gather your opinions on them. As these products or concepts are protected by business secrecy, you must undertake to preserve the confidentiality of the information that will be brought to your attention during the study by not disclosing it.
    • ln particular, you are not authorized to:
    • record the content of the discussions,
    • comment about the contents in any form to anyone or on social media,
    • keep, sell, or distribute the tested products after the end of the study.
    • collect or reproduce, in any form whatsoever, the products, concepts, or materials presented.
  • In case of disclosure, our client may seek your civil liability, claim damages from you, and obtain any measure to stop the infringement of its rights.
  • Furthermore, all concepts, inventions, products, declarations, or other results resulting from this study are the exclusive property of the company organizing the study, and you may not claim any payment in addition to the compensation provided for your participation.